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Even though the future seems far away, it is actually beginning right now.
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I want to be remembered as a poet, a peacemaker, and a philosopher who played.
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Sometimes my body wakes me up and says 'Hey, you haven't had pain in a while. How about pain?' And sometimes I can't breathe, and that's hard to live with. But I still celebrate life and don't give up.
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It doesn't matter how you pray. Just pray. All religions are beautiful and they all have one common belief. There's something bigger and greater than us that can give us and take from us life. It is better than the here and now.
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There can be many different views of what Heaven is like, because Heaven is whatever makes each person eternally and fully happy.
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I would not have lasted a minute, literally a minute, on this Earth without God and angels by my side, because I was born. And right as I was born, I went into a respiratory arrest. So, big things that keep me going are friends and family, God. And another thing is looking forward to what's going to happen tomorrow.
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People will come up to me everywhere and say, 'Ah, I saw you on 'Larry King,' and, 'Ah, I saw you on 'Oprah.' And it's really nice, and a lot of people say, 'Is it a pain?' And I say 'No.' And it's not annoying.
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God gives me hope that there is something greater than us, something better and bigger than the here and now, that can help us live.
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You know, it's kind of hard because I really - I see kids on their Rollerblades and their bikes, and just running around, climbing trees, and I used to do that. And I loved doing that.
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A heartsong doesn't have to be a song in your heart. It doesn't have to be talking about love and peace. It can just be your message. It can be your feeling. Some people might even call it a conscience, even though that's not really what it is. It's your message, what you feel like you need to do.
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My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy.
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Maybe I wanted to have kids because you want to leave behind lessons, leave behind everything that matters to you. That's how you touch the world. But I have to reconsider what it's like to leave a legacy.
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I feel that God has given me a very special opportunity that I should not let go to waste. I use the gift he has given me.
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Remember to play after every storm.